With proven psychometric and operational performance the Diabetes Health Profile (DHP) has a number of distinct advantages over other diabetes-specific measures of the psychological and behavioural impact of living with diabetes which include:
- A clearly defined conceptual framework of the measurement model which conforms to the FDA Final guidance for Industry
- The measurement of eating problems in diabetes – which despite its importance in the management of diabetes is absent in other scales
- Content reported by patients as highly relevant to the psychological impact of living with diabetes
- The exclusion of skip and hypothetical questions
- The use of straight forward language and simple phrasing
- Simple scoring algorithm
- Norm referenced database
Below you will find a summary of the key facts underpinning the Profile.
Key characteristics of the DHP-1 and DHP-18
For your convenience, below is a list of commonly asked questions regarding the Diabetes Health Profile
Q. Can you provide support for my study?
A. General advice on the use of the DHP is freely available. We also offer consultancy services to provide support in the design and analysis of projects or clinical trials using the DHP for a fee. To obtain further information on our consultancy services and the DHP please complete the general enquiries form.
Q. What does the DHP-1 and DHP-18 measure?
A. Both the DHP- and DHP-18 measure the psychological and behavioural impact that diabetes can have on a person's daily living due to diabetes. The three areas are Psychological distress, including depression; Barriers to activity, including perceived restrictions in daily living due to diabetes; Disinhibited eatingincluding response to food cues and level of eating control.
Q. What is the difference between the DHP-1 and DHP-18?
A. The DHP-1 was developed specifically to provide an in-depth assessment of the psychological and behavioural problems experienced by people with Type 1 (insulin dependent) diabetes. The DHP-18 which was derived from the DHP-1 comprises just 18-items common to people with diabetes whether they are Type 1 or Type 2. Although less comprehensive in content as the DHP-1, a distinct advantage of the DHP-18 is that it enables comparison across different treatment groups or treatment effects following intervention.
Q. How do I obtain the DHP?
A. The first step in obtaining the DHP is to complete either the general enquiries or licensing agreement form after which you will be requested to provide more information about the intended use of the DHP and whether this is commercially funded or not. Based on the information provided you will be requested to sign a User Agreement entitling you to use the DHP for the specified use and time.
Q. Do I need permission to use the DHP?
A. Because the DHP is copyright you can only use the DHP, after you have signed a User Agreement which gives you permission to use the DHP for a specified purpose.
Q. Do I have to sign a user agreement?
A. In order to use any version of the DHP you will need to complete and sign a user’s agreement for each study in which the DHP is used. Clich here to register. Please note that without the prior written consent you are not permitted to i.e. use, reproduce, alter, amend, convert, translate, publish or make available in whatever way (digital, hard-copy etc.) any version of the DHP and related proprietary materials.
Q. Is there a charge for using the DHP?
A. Please contact email@example.com for further information regarding commercial sponsorship.
Q. Is the DHP-1 and DHP-18 reliable and valid?
A. Yes, both the DHP-1 and DHP-18 have demonstrated very satisfactory levels of reliability and validity across a number of studies.
Q. Can I modify the DHP for example, change the wording, order of the items, only using some of the items etc?
A. No you cannot make any modifications without first seeking written permission when you return a user’s agreement. The DHP instruments are copyrighted.
Q. Can the scoring system be changed?
A. No, the current scoring system has been tested and validated. Changing the scoring system can result in the scales not measuring the concepts they are intended to measure.
Q. Can all the items and subscales be added together to make a sum score?
A. Each subscale measures a specific concept therefore, adding the three subscales together to give a total score will not result in the measurement of a single known concept. Similarly adding all items to provide a total score has not been explored and therefore, not recommended, as the relative weights to put on each item are unknown.
Q. Can the DHP scores be translated into utilities?
A. Research in association with the University of Sheffield is currently under way exploring whether this is possible.
Q. How many languages is the DHP-1 and DHP-18 available in?
A. The DHP-1 and DHP-18 have both been adapted for use in a number of different languages. Click here for further details.
Q. Is the DHP available in electronic form (e.g. computer, touch screen etc?)
A. The DHP-18 is available in electronic format including, hand held, tablet, IVR and web based.
Q. Can the DHP be used in conjunction with other instruments?
A. Yes it can. As the DHP is a condition specific measure, we strongly recommend it is used in combination with other reliable and valid generic measures to provide a more comprehensive picture of the study population’s health status. Examples of questionnaires used in combination with the DHP include the EQ-5D, SF-36; HAD and PAID.
Keith Meadows - Founder
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